Hi, my name is Gavriel and I am 14 years old. I am an avid horse-rider and ride every week whatever the weather. It allows me to enjoy the freedom of movement, which otherwise I am unable to experience. I am extremely positive and have been told I have a great sense of humour. I will not let Duchenne get the better of me.


Hi I’m Joey, I’m a huge lover of music and I rock at playing the drums….I make people laugh and I’m told I’m a real dude!! I love Minions and enjoy playing Lego with my little sister! I do get upset that I can’t keep up with my friends but I won’t let Duchenne stop me smiling!


Hiya. I’m Saul. I’m going to be a games developer and software engineer. I’m planning to set up my own company. Don’t give up the fight for a better world.  May the force be with you.


Hi, my name is Alex and I am 10 years old. I love playing football and cricket and go regularly to my local scouting group – going away for camping trips is one of my favourite things to do just messing around with my mates. I also love playing on my Playstation with friends. My poorly muscles might not work properly but I don’t let DMD stop me doing anything I enjoy!

Together we can save the world’s strongest boys